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Terkena Penyakit Langka, Bocah Ini Bisa Patah Tulang Jika Batuk Muhammad Fahri Asidiq, seorang anak usia 11 yang tahun yang mengidap penyakit langka kelainan tulang pada tubuhnya atau biasa disebut Osteogenesis Imperfecta.
Ibu Fahri, Sri Astati Nursani mengatakan, putra sulungnya diketahui mengidap penyakit kelainan genetik tersebut sejak usia 4 tahun.
"Usia 4 tahun mulai gak bisa angkat barang berat, badannya mulai patah-patah gitu, saya bawa ke RSUD Ujung Berung dari situ mampu jalan, patahan pertama masih bisa jalan, kedua jalan, ketiga juga jalan, keempat sudah rusak kakinya dari situ mulai parah," ujarnya saat ditemui di kediamannya di jalan. AH Nasution, Cibiru, Kota Bandung, Selasa (18/4/2017).
Sri yang sehari-hari berjualan tisu di depan Masjid Istiqamah, Kota Bandung ini mengakui sudah memulai pengobatan Fahri sejak beberapa tahun lalu namun saat itu belum ada obat yang bisa untuk Fahri.
"Sampai beberapa tahun, terus makin lama makin parah samai nggak bisa duduk, digendong juga tulang pundaknya copot-copot, kalau batuk tulang rusuknya patah, kalau kejatuhan bantal juga patah" paparnya.
Sri juga mengungkapkan Fahri sempat drop hingga berbicara ingin mengakhiri hidupnya. Kemudian tanpa disangka saat ia berjualan di depan sebuah mall di kota Bandung, ia bertemu dengan seseorang yang peduli kepada Fahri. Hingga membuat Fahri bisa terekspose media dan bantuan mulai berdatangan termasuk informasi pengobatan Fahri saat itu.
"Dua tahun lalu ,lagi dagang di BIP ada yg tanya kenapa jualan terus sampe malem saya bilang punya anak butuh pengobatan besar sebulan bisa berapa kali bayar patah tulang kan waktu dulu belum ada BPJS," katanya."Akhirnya mereka masukan saya ke hitam putih, waktu itu ada dokter nonton dikasih tau udah ada obatnya Sebulan masuk pengobatan lumayan," imbuhnya. 16 WNI yang Ditangkap Densus 88 Sempat Dideportasi Otoritas Turki Usut Suap Reklamasi, KPK akan Panggil Plt Gubernur DKI Jakarta Stabilitas Negara Terganggu, PKS: Apa Benar karena Fatwa MUI? Benarkah Pertemuan dengan Rizieq Dongkrak Elektabilitas Anies? Pilgub DKI Diikuti Agus-Sylvi dan Ahok-Djarot Saja, Siapa Unggul? Wow! Makam Hakim Berusia 3.000 Tahun Ditemukan di Mesir Wow! Lego Bangun Rumah Raksasa di Kota Asalnya Duka Tuk Sang Raja Pemersatu, Pecinta Fotografi dan Musik Jazz Ini Patung Aneh Berusia 7000 Tahun yang Bikin Bingung Arkeolog 'Siri Wale' Ritual Merawat Laut di Pulau Tomia Ratusan Kios Pasar Senen Terbakar, Pedagang Terpukul Seranga Hiu di Australia, Seorang Remaja Sedang Berselancar Tewas Cahaya Hidayah di Masjid Lautze Lucu, Kuis Ala Jokowi Saat Temu Masyarakat Indonesia di Australia Pusing Soal Politik, Jokowi Cerita Ekonomi pada WNI di Australia